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AnnieB
#1 Posted : Saturday, November 20, 2010 3:06:11 PM Quote
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Hello All,

I would be really interested to know if anyone elses RA follows a pattern which mine certainly does.

I start feeling slightly bruised and painful in a joint about 3pm to 5pm each day then it gradually gets worse and by the time I go to bed it is really painful, can hardly walk or lift anything and I have many sleepless nights. In the morning I am fairly ok and can get on with all the normal household jobs and go to work (only 2 hours a day).

I can't wait for the MTX to kick in again, I was taken off it for two weeks in September.

Anne x

heather1
#2 Posted : Saturday, November 20, 2010 4:52:07 PM Quote
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Hi Annie, I usually feel a bit stiff in the mornings but take paracetemol every morning and feel ok until later on in the day like yourself, the evenings seem to be worse. Do you take regular painkillers? My rheummy nurse drummed this into me, take them regularly to keep up the level of pain relief, if you take them when you are sore its not as effective.

Heather xxxx
JulieM
#3 Posted : Sunday, November 21, 2010 11:07:26 AM Quote
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Yes i would agree with Heather there-mine seems to get progressively worse as the day goes on.
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
AnnieB
#4 Posted : Sunday, November 21, 2010 11:08:28 AM Quote
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Hi Heather

Thanks I will ask when I next see the doctor (I don't have a rhummy nurse) but the only reservation I have about that is that when I had a tooth infection recently and was taking many pain killers the rhummy believed that could have caused my liver count to be high and the reason why I had to be taken off the MTX for a while.

Its a never ending circle that we have to try and keep on top of it and can be so draining for all of us.

Anne x
smith-j
#5 Posted : Sunday, November 21, 2010 7:02:46 PM Quote
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Anne

RA is not a forgiving disease. The more you do during the day, the more you will suffer at night. It is not easy when you are trying to lead a normal life. I agree with the others that you need some regular painkillers to get on top of it. I take 8 paracetemol a day at the prescribed intervals and leave the strong stuff for the night. My GP said people underestimate paracetemol as a painkiller as long as you take the full prescribed dose and keep the levels constant so that it is built up for the night times. Paracetemol is easier on the stomach and liver. I sympathise with the lack of sleep at night. Last night I had raging toothache in both knees and saw every hour of the clock. Today I have sat on my backside all day and everyone has looked after me and the pain is barely there.

I hope you get some relief soon and that the Methotrexate starts to kick in for you.

Jackie
xx

ceri44
#6 Posted : Monday, November 22, 2010 11:15:26 AM Quote
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Hi Anne
Totally understand what your saying! I have come to dread mornings and evenings and on the mornings im working have to get up at 5 just so ill be ok to leave for work at half 7! Evenings then everything starts hurting again! I agree with Jackie def need to keep up pain relief, be worth speaking to your dr. Hope the mtx kicks in soon and you have a better nights sleep take care xx
LynW
#7 Posted : Friday, November 26, 2010 9:26:57 PM Quote
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Hi all

I totally agree with Jackie's post. You must keep the pain relief topped up otherwise it is ineffective. It will not work adequately if it is used as a pain reliever once the pain has started. It must be in your system all the time and reaching its maximum efficacy by bedtime. This applies regardless of whether it's paracetomol, cocodamol or whatever! Try to get your hands on some stronger meds that will see you through the night, perhaps amitriptilline or tramadol.

Don't underestimate the value of good pain relief, it's invaluable when used correctly. It took me a long time to learn and accept but I wouldn't be without it now!

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Rose-B
#8 Posted : Friday, November 26, 2010 11:34:20 PM Quote
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Hello Anne.

Agree what Lynn says I have been on amtripl since being diagnosed and when I was really
in pain about 3 weeks ago GP issued me Tramadol .

I won't repeat but Lynns advice is spot on.

Rose
AnnieB
#9 Posted : Sunday, November 28, 2010 1:50:07 PM Quote
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Dear All

Thank you for you information, I will certainly start taking paracetamol on a regular basis and will ask my doctor for something stronger when I next see him in a few weeks time.

Its awful isn't it I've never been one to take drugs of any sort on a regular basis and its tough having to change your life style and rely on medication.

Feeling abit sorry for myself.

Anne x
jenni_b
#10 Posted : Sunday, November 28, 2010 6:40:50 PM Quote
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well done anne, you are going great guns getting your head around things.

there are no medals for martrydom on here. None! take the damn pills (yes we all HATE them). otherwise the pain just builds to an unbearable peak.

then you cant get out of it.

you might find as the treatment gets better you can take eg. 1 paracetamol instead of 2 at lunchtimes and then down to none.

In the meantime, keep goingSmile
how to be a velvet bulldoser
Paula-C
#11 Posted : Monday, November 29, 2010 12:38:00 PM Quote
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Just want to echo what Jackie said about paracetamol's. My GP also said that it is one of the most underestimated pain killer.

I have also been told to keep taking painkillers on a regular basis (even though I hate it and have sometimes tried to stop) so I have always got pain relief in me. It is no good just taking the odd one here and there when you think you need it, you have to have a good build up of it in your system to get the best benefit.

Paula x
Maria_R
#12 Posted : Tuesday, November 30, 2010 7:48:18 AM Quote
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Hi all

This has been a revelation for me.I've always taken pain relief as and when I need it. The doctors have never told me otherwise. I've always been reluctant to take more drugs on a regular basis.

To add my bit- I find I'm worse at bedtime- within about half an hour of getting into bed, I often start to get aches and pains in my hands, even if I've been ok during the day. I rarely get a good night's sleep. Some mornings it can take me a while to get going but usualy it's not too bad.

Maria
AnnieB
#13 Posted : Wednesday, December 01, 2010 10:46:54 AM Quote
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Hi All

Taken on board what has been said, I have today phoned the doctor and waiting for a telephone consultation to see if he will issue me with a prescription for some strong pain relief.

Thanks Anne x
AnnieB
#14 Posted : Thursday, December 02, 2010 3:00:23 PM Quote
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Hi All

Got a prescription for tramadol hope it works.

Anne x
ceri44
#15 Posted : Thursday, December 02, 2010 3:37:34 PM Quote
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Hi Anne
Fingers crossed the tramadol help I take 2 every evening and they def help with getting a good nights sleep, hope you start to feel better soon luv Ceri xx
Egg Lady
#16 Posted : Friday, December 03, 2010 5:41:54 AM Quote
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Feeling rather lonely and isolated from family at the moment... having flare up and no-one understands the pain... Coming on here and reading the various post has made me feel so much better.. particularly the comments on pain relief... I hate tablets... but realise this has to be the way forward for pain relief... waiting to go on Methotrexate... Thanks everyone

Smile
Good advice is best followed by the art of listening

dorat
#17 Posted : Friday, December 03, 2010 10:29:39 AM Quote
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Hello Egg Lady!

Welcome to the forum!
You won't feel lonely again, now that you have joined us, you'll get lots of support and advice on here.
We have all been where you are now, all hate taking the tablets but soon realise it is the only way forward!
Keep posting, looking forward to getting to know you.

Love, Doreen xx
Julia17
#18 Posted : Friday, December 03, 2010 12:04:54 PM Quote
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Hello from me too !

Good you are here, so much support and advice. I would never have known, unless I was on here the importance of pain relief and how take it, things the medical profession never seem tell you in my experience.

Look forward to hearing from you again.

Julia x
Egg Lady
#19 Posted : Friday, December 03, 2010 1:07:58 PM Quote
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Hi

Julia and Doreen thank you so much for your welcomes... feeling better already. Really. Thanks x
ThumpUp
Good advice is best followed by the art of listening

SueB
#20 Posted : Friday, December 03, 2010 2:06:59 PM Quote
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Hi Egg Lady and welcome. If you need good advice this is the place. When you have had enough and just want a rant, you will find listeners here. Doctors can be useful, but everyone on here really knows, from first hand experience what you are feeling - and it makes a difference.
Take care
SueThumpUp ThumpUp
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